Some of you have asked me, so here is the latest on Libby. She looks so good. I think that it has done her good just to be home! I know that it has been good for Gracie!!!!
Here is the latest...
Libby and I had a good trip to Houston. It was pretty quick, but we got a chance to catch up with the Isenhowers a bit and see their house beautifully decorated for Christmas. Libby said she thought their tree was perfect!!
Yesterday started with an "owie" for Libby as she had to get some blood drawn. She was pretty upset, but we got it over with and I could reassure her that we were all done with "pokies" for the day. She did a FABULOUS job during her echo, xrays, and doctor visits. Her labs looked good and her xray was much better. Her echo showed that her valve is still pretty leaky, which is not a good thing. The hope is that with time and increasing one of her medications the valve will improve. It is a big deal and lays heavy on my heart as we've been told there is "nothing more they can do" surgically to make it better. A valve replacement is not a possibility given her Fontan circulation. So our only option (if it gets worse or causes her severe symptoms) would be a heart transplant, which we've been told would have to be a heart/lung transplant. BUT - as GrandPenny always reminds me - don't let the FEAR of tomorrow rob you of the JOY of today. We are full of joy today. We are home, together, and have SO MUCH to be thankful for!!! We will return to Houston in about 2 weeks for another check up and labs. We hope you are all having a joyful Christmas season, remembering what is truly important in this life.
Love, Gracie
Tuesday, December 11, 2007
Libby's Visit to Houston this week
Posted by Jennifer at Tuesday, December 11, 2007
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